Welcome SMS Community & Friends!

We are committed to organizing and hosting a high-quality virtual experience that is full of content that is both relevant and empowering for all attendees. This event is open to parents, caregivers, educators, and medical professionals – anyone who wants to learn more about Smith-Magenis syndrome and connect with the SMS community!  

PRISMS, an acronym for Parents and Researchers Interested in Smith-Magenis Syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), and fostering partnerships with professionals to increase awareness and understanding of SMS. 
The PRISMS Virtual Summit will feature sessions spread across three days, September 9-11, 2021. Many sessions will feature a mix of pre-recorded and live content. Pre-recorded content will be available in advance, so you can watch ahead of time and join us live for Q&A. 

This year we anticipate virtual attendees from all over the world will gather to listen and participate in presentations from our expert speakers, discuss concerns and issues, and meet other families, all in a virtual setting. Attendees will learn from educators, researchers, medical professionals, and each other. We hope attendees will gain a better understanding of SMS individuals and what they can do to help them as well as gain knowledge, perspective and hope. 

• Access to more than 15 sessions lead by experts from around the world. With session topics ranging from genetics, sleep, behavior, research updates, mental health, caregiver support, and more!
• PRISMS Virtual Summit Swag Box for first 100 households to register.
• Networking with presenters and attendees within the virtual platform.
• Access to the Virtual Exhibitor Hall.

• Research Update Day! Our sessions on Thursday will focus on new developments in research and clinical care, featuring speakers from our Clinic and Research Consortium, Professional Advisory Board, and other research partners. Tune in and learn what is new in SMS research.

• First Steps Session – A time for families with a new diagnosis of SMS to connect and learn more about the community and how to get support.  
• Setting the Stage for Success – Strategies to support behavior and learning in students with SMS. 
• Evening Social – Stop by in the evening to meet the PRISMS Board! Attendees will be entered for a chance to win a free registration to next year’s 2022 in-person conference.  

• Siblings and SMS –Presentations and advice from SMS siblings. 
• Resiliency Workshop – Join the PRISMS Advocacy Workgroup to learn how to support yourself as a caregiver of an individual with SMS.
• End of Summit Social – All attendees are invited to join us for some social time to cap off your summit experience!