Session Recordings Available

Below is the list of sessions done during the Virtual Summit. Recordings for all of these sessions are now available within the platform - please register to gain access to them. 

Thursday | September 9th | Research Day
Welcome
Speaker: Casey Gorman, PRISMS Executive Director  

Vanda Pharmaceuticals: Hetlioz Presentation (LIVE)
Speaker: Christos Polymeropoulus, MD, Vanda Pharmaceuticals 
Speaker: Frances Fritz: Vanda Pharmaceuticals, Case Manager
 
PRISMS 2020 Summer Scholar Presentation
Speaker: Anusha Gandhi , BS
 
Smith-Magenis Syndrome Research Foundation (SMSRF) Update 
Speaker: Gianlucca Pirozzi, MD, PhD
 
PCRC: PRISMS Clinics Research Consortium 
Speaker: Casey Gorman, PRISMS Executive Director
Speaker: Robby Miller, PRISMS Advisor on Clinic Relations

SMS Patient Registry 
Speaker: Theresa Wilson, MS, R
 
Got Sleep? Circadian and Metabolic Challenges in SMS
Speaker: Sarah Elsea, PhD, FACMG, PRISMS PAB Chair

PRISMS Research Update (LIVE)
Speaker: Sarah Elsea, PhD, FACMG, PRISMS PAB Chair
Speaker: Casey Gorman, PRISMS Executive Director
Speaker: Robby Miller, PRISMS Advisor on Clinic Relations
Speaker: Theresa Wilson, MS, RD
 

Friday | September 10th
Welcome 
Speaker: Casey Gorman, PRISMS Executive Director
Speaker: Brandon Daniel, PRISMS President

Keynote Presentation
Speaker: Ann C.M. Smith, MA, DSc (Hon), CGC

First Steps: Navigating the Early Days of an SMS Diagnosis and Finding Support Along the Way (LIVE) 
Speaker: Allison Stephanouk, PRISMS Board Member
Speaker: Dawnda Daniel, Parent
     Parent Panel:
John and Brooke Widmer
John & Joanna Roseborough
Jason and Charlene Michaud
 
Managing Relational Stress and Building Resiliency in Families of Children with Special Needs (LIVE)
Speaker: Eileen Devine, LCSW 

Promoting Safety for SMS Persons Living Outside of the Home 
Speaker: Rebecca Foster, PhD, PRISMS PAB Member
      
Neurological Implications in SMS. What Have We Learned? (LIVE)
Speaker: Andrea Gropman, MD, PRISMS PAB Member

Evening Social: Meet the PRISMS Board of Directors (LIVE)
     Panel: The PRISMS Board of Directors
Brandon Daniel, President 
Maggie Miller, Vice President 
Percy Huston, Treasurer 
Tina McGrevy, Secretary 
Amy Pereira, Board Member 
Allison Stephanouk, Board Member  
Tim Hibbs, Board Member 
Denien Rasmussen, Board Member 
Diane Erth, Board Member 
 

Saturday | September 11th
Welcome 
Speaker: Casey Gorman, PRISMS Executive Director  

Promoting Well-being for Siblings of Individuals with SMS
Speaker: Rebecca Foster, PhD, PRISMS PAB Member
 
PRISMS Survey Results on Birt-Hogg-Dube Symptoms in SMS (LIVE)
Speaker: Brenda Finucane, MS, LGC, Former PRISMS PAB Member
Moderator: Santhosh Giriragjan, MBBS, PhD

Setting the Stage for Success: Effective Strategies to Support Behavior and Learning in
Students with Smith-Magenis Syndrome  from Early Years through High School 
Speaker: Barbara Haas-Givler, Med, BCBA, PRISMS PAB Member  

Building Resiliency: Developing a Caregiver’s Behavioral Support Plan. We’re talking 
About YOU, Not Your Kid! (LIVE)
     Panel Presentation, PRISMS Advocacy Committee:
Barclay Daranyi
Melissa Haley
Leah Baigell
Amanda Serio
Tina McGrevy

PRISMS Virtual Summit Social & Scavenger Hunt (LIVE)
Host: Diane Erth, PRISMS Board Member
 

The conference schedule will be continually updated, so please continue to check.