ADDITIONAL INFORMATION:
PHOTOS & VIDEOS NEEDED!
Conference Slideshow
We want to feature your SMS cutie!! Please send pictures to be included in our conference slideshow. Pictures can be sent to [email protected]!
#SMSPossibilities Campaign
Our #SMSPossibilties campaign is a positive awareness campaign for our SMS community to give a voice to our loved ones with SMS and to provide them with an opportunity to share who they are!
Videos will be featured throughout PRISMS website, social media pages, and at our 2020 International Conference in Dallas, TX ! Let’s celebrate all of the possibilities that our children have achieved and are striving to achieve which make this rare community so extraordinary.
Tips for Your Short Video:
- Video submissions should be no longer than 2 minutes in length that demonstrates a unique quality or passion.
- In the video, you or your loved one with SMS should state their name, age, (optional), and their “SMSPossibilties” statement before showcasing the activity or quality. Ex. “My name is John. I am 12 years old and I can run fast!” or Ex. “This is my daughter Jane. She is 20 years old. She is a singer!”
- Videos can be filmed on a laptop or smart phone device. Try to film in a quiet area, where you can easily be heard. And a well-lit area, where you can easily be seen. When filming on a smart phone, film with the device held horizontally.
- Videos are to be submitted to PRISMS, Inc., through our Official PRISMS Facebook page (https://www.facebook.com/SmithMagenisSyndromePRISMS/) or to [email protected].
- Videos must be submitted by June 30th, 2020 for inclusion at the 2020 International Conference.
PRISMS NIGHT AT THE COURTYARD ROOFTOP
When: Thursday, July 31st 8:00pm-11:00pm
Where: Courtyard by Marriott Dallas, Downtown/Reunion District
Come join us for a night "above the town" in a fundraiser supporting PRISMS! On Friday, July 31 from 8:00pm-11:00pm we want you to celebrate with us! This is an "adults only" event and tickets are $100 per person. Our venue this year is absolutely stunning with a cool indoor lounge, bar and two outdoor terraces with seating. Come take in the views of downtown Dallas skyline, including Dealey Plaza, The Reunion Tower, and more!
We will have appetizers and cocktails to enjoy as you connect with others in our SMS community. Make sure to check out our photo booth, join the heads/tails game and play our 50/50 Raffle. It's sure to be an evening you won't soon forget!
We look forward to seeing you there! Space is limited.
Proceeds will help to offset some of the expenses that make the 2020 conference affordable for all families, including childcare costs and family scholarships. This is a special and unique occasion for you to join your friends who are part of the PRISMS community and enjoy a social gathering.
To purchase a ticket or donate, please go here: NIGHT AT THE COURTYARD ROOFTOP TICKETS
PRISMS PATIENT REGISTRY
The SMS Patient Registry aims to accelerate research in SMS by gathering as much data as possible about SMS in one place and making it accessible to interested researchers. Patient registries are especially important in rare diseases like SMS, since there are fewer individuals with SMS being seen at any one clinic.
To help make it easier for our community to participate, our research team will be on-site at the conference to help guide interested families through the Patient Registry sign-up process.
If you are interested in getting more information about the registry and how to participate at the conference, make sure to check the box during registration to allow us to reach out to you about registry participation! For more information check out our website here, or contact the study team via email at [email protected] or by phone at 713-798-5689.
TRANSPORTATION
Hyatt Regency Dallas is approximately 15 minutes from Dallas Love Field Airport (DAL) and approximately 25 minutes from Dallas/Fort Worth International Airport (DFW).
For Drivers: If you are planning to drive to the hotel, PRISMS has a discounted rate of $14/day for Self-Parking with in and out privileges.
Hyatt Regency Dallas - Please use the website link below to reserve a room at the PRISMS discounted rate of $149.00 single/double, plus applicable taxes. The discounted rate is available three days before the conference as well as three days after the conference based on availability.
- Make your reservations prior to July 7, 2020 to receive the discounted rate.
- After July 7, 2020 the discounted rate may not be available.
- Book Your Group Rate for PRISMS or call 800-233-1234 (toll free).
Uber/Lyft/Taxi:
- Uber: $15.00 from Dallas Love Field Airport (DAL) or $25.00 from Dallas/Fort Worth International Airport (DFW).
- Lyft: $16.00 from Dallas Love Field Airport (DAL) or $32.00 from Dallas/Fort Worth International Airport (DFW).
- Taxi Cab: $30.00 from Dallas Love Field Airport (DAL) or $53.00 from Dallas/Fort Worth International Airport (DFW)
RESTAURANTS & ATTRACTIONS
Onsite Hotel Restaurants:
- Centennial (2nd Floor, American Fare)
- Parrino's (2nd Floor, Italian Fare)
- Monduel's (2nd Floor, Bar Fare)
- Coffee's Post (Lobby Level, 24-Hour Market)
Dallas Attractions www.visitdallas.com
Within 15 minutes of the Hyatt Regency Dallas
African American Museum of Dallas
|
www.aamdallas.org/ |
Cotton Bowl Stadium at Fair Park
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www.fairpark.org/visit |
Dallas by Chocolate & Dallas Bites Food Tours
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www.dallasbychocolate.com/ |
Dallas Farmers Market (Dining & Shopping)
|
dallasfarmersmarket.org/ |
Dallas Holocaust and Human Rights Museum
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www.dallasholocaustmuseum.org/ |
Dallas Museum of Art
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dma.org/ |
Dallas World Aquarium
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www.dwazoo.com/ |
Dallas Zoo
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www.dallaszoo.com/ |
George W. Bush Presidential Center
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www.bushcenter.org/ |
John F. Kennedy Memorial Plaza
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646 Main St, Dallas TX 75202 (No Website) |
Klyde Warren Park
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www.klydewarrenpark.org/ |
Nasher Sculpture Center
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www.nashersculpturecenter.org/ |
Old Red Museum of Dallas County
History & Culture
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www.oldred.org/ |
Perot Museum of Nature and Science
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www.perotmuseum.org/ |
Pioneer Plaza
|
www.texastrees.org/pioneer-plaza/ |
Reunion Tower Geo-Deck
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reuniontower.com/ |
Sixth Floor Museum at Dealey Plaza
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www.jfk.org/ |
SPARK! (Children-Focused)
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www.sparkdallas.org/ |
Texas Discovery Gardens
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txdg.org/ |
The Ann & Gabriel Barbier-Mueller Museum:
The Samurai Collection
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www.harwooddistrict.com/arts |
Zero Gravity Thrill Amusement Park
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www.gojump.com/fun-things-to-do-dallas/ |
Within 30 minutes of the Hyatt Regency Dallas
Dallas Arboretum and Botanical Garden
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www.dallasarboretum.org/ |
Dallas Children's Theater (Children-Focused)
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www.trinitytreetops.com/ |
Irving Arts Center
|
www.irvingartscenter.com/ |
Topgolf Dallas (Park Lane)
|
topgolf.com/us/dallas/ |
Trinity Forest Adventure Park
|
www.dct.org/ |
Within 45 minutes of the Hyatt Regency Dallas
PINSTACK BOWL (Plano)
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pinstackbowl.com/ |
Within 90 minutes of the Hyatt Regency Dallas
Texas Motor Speedway
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www.texasmotorspeedway.com/ |
Additional Information can be found on the Conference Registration page. If you have additional registration questions, please send an email to [email protected].
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