Additional Information: Photos & Videos Needed!
#IAm Campaign
PRISMS believes you are your own storyteller. PRISMS #IAm campaign is an SMS positive awareness campaign to give a voice to our loved ones with SMS and provide them with an opportunity to share who they are!
Together, we can ignite a deeper understanding of the array of unique qualities, passions, and talents of our SMS family!
How It Works
It’s simple, we invite you to share a short video with us showcasing your loved one with Smith-Magenis syndrome engaging in an activity he/she enjoys or honoring a quality he/she exhibits that makes them uniquely them!
Ex. I am a dancer; I am happy; I am a gamer; I am a beach lover; I am enthusiastic; I am a Frozen-fanatic; I am a reader; I am a hugger, etc.
- Share your video with us on PRISMS Facebook page, at [email protected], or by sending to 919-749-1780.
- When sharing on social media, be sure to use the hashtags: #IAm #prismsorg #PRISMS25.
Videos will be featured throughout PRISMS website, social media pages, and at our 2018 International Conference in Pittsburgh, PA (July 19-21)!
Let’s create a social change to build a world ready to recognize all of the many unique qualities that make our rare community great!
Tips for Your Short Video
- Video submissions should be no longer than 2 minutes in length that demonstrates a unique quality or passion.
- In the video, you or your loved one with SMS should state their name, age, and their “IAm” statement before showcasing the activity or quality. Ex. “My name is John Doe. I am 12 years old. And I am a runner!” or Ex. “This is my daughter Jane Doe. She is 20 years old. She is a singer!”.
- Videos can be filmed on a laptop or smart phone device. Try to film in a quiet area, where you can easily be heard. And a well-lit area, where you can easily be seen. When filming on a smart phone, film with the device held horizontally.
- Videos are to be submitted to PRISMS, Inc., the Official PRISMS Facebook page (https://www.facebook.com/SmithMagenisSyndromePRISMS/) or to [email protected] or 919-749-1780.
- There is no limit to the number of entries an individual can submit.
- Videos must be submitted by June 15 for inclusion at the 2018 International Conference.
There will be an opportunity at the end of the conference during the closing ceremony to showcase more of our community through a slideshow of photos.
Each family can submit two photos only, please. Please include your child's first name for the slideshow pictures and age.
Send them to: [email protected] no later than June 15, 2018.
PRISMS NIGHT at the City Center
When: Thursday, July 19th 8:00pm-11:00pm
Where: Marriott City Center Ballroom
This is an “adults only” event and tickets are $100 per person. We have a limited number of 125 tickets available for the evening. It is recommended to get your tickets early. There will be raffle opportunities, heavy hors d’ouevres, drink specials, and more!
Proceeds will help to offset some of the expenses that make the 2018 conference affordable for all families, including childcare costs and family scholarships. This is a special and unique occasion for you to join your friends who are part of the PRISMS community and enjoy a social gathering.
To purchase a ticket or donate, please go here: NIGHT AT THE CITY CENTER TICKETS
TRANSPORTATION: SuperShuttle
SuperShuttle Shared-Ride Rate is $24.00/passenger for one way to Marriott City Center from Airport (not including gratuity at the customer’s option). Round trip is $43.00 per person.
How to make reservations:
A special rate has been negotiated on your behalf. You can book your service
two ways:
- Go to: www.supershuttle.com, or use the SuperShuttle App, and enter the discount code (QCVAW).
- Click on this website link into your browser and choose “Airport Ride”.
NOTE: A $3.00 BOOKING FEE will apply to phone reservations that are booked by a reservation agent.
For Drivers:
If you are planning to drive to the hotel, PRISMS has a discounted rate of $18/day with in and out privileges.
Pittsburgh Marriott City Center - Please use the website link below to reserve a room at the PRISMS discounted rate of $139.00 single/double, plus applicable taxes. The discounted rate is available three days before the conference as well as three days after the conference based on availability.
- Make your reservations prior to June 25, 2018 to receive the discounted rate.
- After June 25, 2018 the discounted rate may not be available.
- Click on this hotlink or call 800-228-9290: Book your group rate for PRISMS
The Pittsburgh Marriott City Center is in the heart of the city within the downtown district, across from PPG Paints Arena and moments from Heinz Field and the best of downtown Pittsburgh - from Duquesne University to PNC Park.
RESTAURANTS & ATTRACTIONS
Steelhead Brasserie and Wine Bar
Crafted North
Starbucks
Pittsburgh Attractions www.visitpittsburgh.com
The Pittsburgh Marriott City Center is located near major attractions. Some of those attractions are:
Within 15 minutes of the Pittsburgh Marriott City Center
Andy Warhol Museum
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www.warhol.org |
PNC Park (Home to the Pittsburgh Pirates)
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www.mlb.com/pirates |
PPG Paints Arena
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www.ppgpaintsarena.com |
Monongahela Incline
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visitpa.com/pa-historic-towns/monongahela-incline |
Senator John Heinz History Center
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www.heinzhistorycenter.org |
Pittsburgh Zoo & PPG Aquarium
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www.pittsburghzoo.org |
Carnegie Museums of Pittsburgh
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www.carnegiemuseums.org |
Pittsburgh Children's Museum
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www.pittsburghkids.org |
The Duquesne Incline
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www.duquesneincline.org |
The National Aviary
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www.aviary.org |
Phipps Conservatory and Botanical Gardens
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www.phipps.conservatory.org |
Southside Works (dining and shopping)
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www.southsideworks.com |
Station Square (dining and shopping)
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www.stationsquare.com |
ToonSeum (Cartoon Museum)
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www.toonseum.org |
Schenley Plaza
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www.pittsburghparks.org/schenley-plaza |
Within 30 minutes of the Pittsburgh Marriott City Center
Sandcastle Water Park
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www.sandcastlewaterpark.com |
The Frick Pittsburgh
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www.thefrickpittsburgh.org/ |
Within 45 minutes of the Pittsburgh Marriott City Center
Kennywood Amusement Park
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www.kennywood.com |
Pennsylvania Trolley Museum
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www.pa-trolley.org |
Within 90 minutes of the Pittsburgh Marriott City Center
Falling Water (Frank Lloyd Wright)
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https://www.fallingwater.org/ |
Idlewild and SoakZone
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www.idlewild.com |
Additional Information can be found on the Conference Registration page.
If you have additional registration questions, please send an email to [email protected].