Getting to Yes, Data Sharing and HIPAA
Tuesday, October 29th, 2019
10:30 AM - 12:00 PM: Breakouts
• Government data systems often reflect the siloed agencies and departments through which governments deliver services. Actionable Intelligence for Social Policy (AISP) at the University of Pennsylvania works with state and local governments to break down those silos and collaborate with diverse stakeholders to build Integrated Data Systems (IDS). IDS link administrative data across government agencies for a more comprehensive view of individuals, families, and communities. Since 2008, AISP has coordinated a national network of jurisdictions operating IDS in order to surface how policies and practices effect the individuals they serve.
• While this may sound like a technical project, an IDS is primarily relational, involving an ever growing ecosystem of agency staff, executive leaders, community stakeholders, practitioners, government attorneys, and researchers. During this session, presenters will describe the national context in which IDS have proliferated in recent years and the ways in which states have successfully achieved cross-sector data sharing within collaboratively constructed governance structures and legal frameworks. In particular, presenters will describe their experiences working with legal counsel from various jurisdictions to acknowledge and overcome common challenges, craft foundational legal agreements with clear processes for confidentiality, security and access, and enable researchers and practitioners to jointly engage with evidence and improve public policy.